
Courtesy: Stuart Parmley TGKW Flickr
A little while ago, a follower left a comment on one of my entries and I wrote him back and talked about what he had said to us. Today I received a response to my note. And I thought that I would write to you and share some things with you from my life in the hopes that you might see things a little differently in yours.
The Neon Sign Theory:
Everybody has a neon sign that sits above our heads and displays the feeling or emotion of the moment to those of us around you, that is, if you have eyes to see it. This is a theory that I coined a few years ago watching people come to my home group to get sober. This is something that took years to perfect. I recall a few particular people who came in those days.
There are 12 steps from the main church door to the hall where we hold our meeting. Through two sets of double doors and into the room, which is lit by halogen lights in the ceiling. It is a very appealing space. Not too bright, not too dim. It is a very hallowed room. Because God has moved in the room over the years.
So people come down the stairs and I see the neon sign. Some say lonely, some say angry, some say depressed, some say looking for love… In any case, these are just ideas. Watching people come week in and week out, over time, they change, some fight it tooth and nail, and some really sink into it looking to be reborn in what ever way they can, because let’s face it – coming from hell – is a long journey.
The best experience I can tell you about is Miss Nancy. Miss Nancy was a quiet and humble woman who used to come to the meeting and she was so down on herself about her problems, and it took a long time for her to get comfortable in the room. But little by slowly she got better. And one day low and behold, she was sharing in the group and I saw the light go on above her head and God moved in the room, and in that moment she got it. Witnessing someone “Getting It” is one of the most powerful experiences. And I’ve seen it happen many times over.
Sometimes people are so troubled when they come that the sign is dark and scary. And I think that by just being present and supportive is one of the best tactics to use when you don’t know someone very well. It takes time to get to know someone. And that goes for any relationship you might have with someone.
And if they stick around long enough and they are open to the stirring of the spirit, transformation happens, despite ourselves.
The train of thought is that we are not meant to be alone in this world. I mean what kind of God would there be if he put us here to spend eternity alone or forever searching for the one we are supposed to be with. I don’t think that we are meant to be alone.
And sooner or later that neon sign will change and say “OK I AM READY!!!”
Sooner or later, we spend some time getting better. Now this is universal and can be applied to everyone in life. Not just the sick and addicted. We spend our lives learning about ourselves. Some spend hours upon hours reading self help books, watching Oprah talk about becoming the person we are meant to be, and that the Best of Times is Now …
No matter where you live or in what ever social circle you run in, eventually we will run into someone that may complete the other half of our life.
If I look at my life, when I turned 21 – I wasn’t ready for a real relationship, because I was too busy trying to drink and party at the bar night after night. And that took up many years of my life. I had no idea what it meant to be responsible. I had no idea what it meant to be in “relationship.”
I was still looking for myself, in other people. Sex was something that was there. We were all young, and nobody really cared about things Long Term. It was get it now, get it quick and live fast, die young and leave a good looking corpse.
We weren’t afraid of anything during those years. The scourge of AIDS had not hit our community yet …
But it was coming …
AIDS hit us when I turned 25. The first time I heard that word came soon after I lost a boyfriend to suicide. They told me after the fact that he had AIDS. And it would hit me less than a year later. The boy I was dating took off the hour he heard my diagnosis. The friends I had all took off and never spoke to me or came to visit me for any reason. It was harsh. It was terrible.
I watched people turn from Humans into Animals over night. I’ve never seen so much hatred and condemnation in all my life. What the straight and religious community did to those of us who were sick and dying was reprehensible.
In the gay world, you have to be young, pretty, wealthy and buff. And that is the way that most gay men in their 20′s live like. And then the older you get, the harder you try to hold onto your twenties. But as we all know, eventually we grow up. Sooner or later time marches on and eventually you realize that it is marching across your face … (Movie – Anyone ???)
I had survived AIDS. I lived past my death date three times. I was still alive, but so many friends I knew were dead. Hundreds upon hundreds of people were dead, and I was still alive …
What the hell was I going to do?
I lived In South Beach for a number of years post diagnosis. South Beach is still a nightclub – live fast – drink copious amounts of liquor and look devastatingly beautiful. Hit the beach, then the gym, and at night you hit the club to find Mr. Right now.
By now I am in my thirties. And I am changing. People who live by the beach, never go to the beach, because they have work and lives. So that’s what tanning salons are for. It is a dog eat dog world. The whole focus of existence is to look devastating. No matter the cost.
I thought that I should do things like this. Tan, Gym, looking buff and trying to fit into a world that I knew I no longer fit it. AIDS had morphed my body into a pear shape. I’ve got a belly, that I couldn’t get rid of to save my life. I am not as agile as I once was. And I surely don’t look like I did when I was 21. But for the life of me, I thought that that’s what I needed to do to attract Mr. Right Now.
I was wrong.
I’ve told this story before countless times. I had had my last drink. Nobody noticed me. Nobody cared that I was there. Fags are ruthless. Especially when it comes to social groupings. Nobody wants to love a sick person…
That would terribly inconvenience a healthy persons pursuit of life having to care for a sick boyfriend, God Forbid …
I knew I was beat. I was 34 when I got sober again. The gay group I hit the first meeting didn’t even notice I was there. They all ignored me. So I waited for the next meeting and that’s when I met Fonda and the rest of the Sober on South Beach Group of AA. She hugged me and welcomed me and she was the face of recovery. She was the proper transmission of the program.
In Just Being Present.
I was no longer alone. For many months I toiled and fussed. I got sober and I worked on my life, getting better, despite living in a city of fags who had no concern that I was there. It didn’t matter. I was no longer vying for a spot on the “chosen” list. That just wasn’t me. Any more.
I stuck and stayed. And I stayed stopped. I never took a drink again. And so my quest to “fit in” ended. I knew that I would never find myself there again. I had to make the decision that I was either going to pine the past and try to hang on to something that wasn’t me and fail, OR I was going to grow up.
I had hit that Twenty going on Thirty wall.
I grew over that wall. Ever so slowly.
I decided that I needed more than I was getting. It cost too much to live. I had to choose between buying food and paying rent / and or / buying medicine. I couldn’t do all three at the same time. That’s healthcare in the United States.
People with AIDS paid a hefty price for being sick. And drug companies made a mint off the backs of sick and dying people. And they still do today.
I came here and found a place to live. And found a meeting I liked. I had found a doctor who would treat me, who treated patient Zero, the first AIDS patient, the French Flight Attendant. He’s a big wig in the AIDS treatment game.
Here I am in my mid thirties and I have been sober for almost a year, I am rooted, doing aftercare and going to meetings. I wasn’t looking for love, I really wasn’t looking for anything.
But love came looking for me.
A chance passing in a doorway, a brief look at his face, And I knew, He was the one. And It came to pass that he was sober as well. I’ve been living with AIDS for now 9 years. I survived.
You never know when love is going to approach. And I think the thing we need to be aware of is Love is out there, and sometimes it comes to us, and we might not be present to the experience to notice it. You just have to learn to see it when it comes at you.
I knew from that very first moment that hubby was the man I would spend the rest of my life with. I guess I grew up enough and I had done enough work on me that the universe conspired to help me.
Because you know that when we give something to the universe if the universe thinks we are ready for it, that it responds in kind.
I don’t remember ever giving that thought up to the universe. That I was looking for love, but I think the universe decided that I was no longer supposed to be alone anymore.
I was ready for responsibility. I was ready to fall in love. I was still alive and when time came for me to disclose, hubby did not blink, he did not shy away, he did not turn away. And I will be forever grateful for that.
There is learning to be had at every generation decade. From our 20′s into our 30′s. Well into our 40′s. I got sober, met my now husband. I went back to school and got an education twice over. And now in a matter of weeks I will end my long education career. I’ve spent the better part of 10 years working on my education. And in the next decade of my life, I will figure out what I am going to do with that education.
I don’t know what I am supposed to do in my forties. Or what lessons I still need to learn. So I will continue doing what it is that I do… I am a husband, a friend, a sponsor, and member, and a participant in my community.
I will continue to write here and respond to you and write for you to tell you what I have learned, and what you can learn about yourself.
There is a whole world out there waiting for each and every one of you. Be the person you are. And if you don’t fit the gay mold of your community, then so be it. Gay communities are fickle and harsh to many. Those who are just out to party, have sex and make whoopie never once stopping to see the damage they are doing to others, You Have My Permission to Be Who You Are.
At some point we all grow up, No matter how hard gays think they can beat the clock, they really can’t because eventually, the beach bunny will become an old hasband.The party boy will realize that partying is not a way of life any more. Eventually we all grow up, despite ourselves.
Ten more years have passed. It is 2012. I was diagnosed in 1994. You can do the math. Coming here was the best decision that I ever made in my life.
There is someone out there waiting for you to find them.
I was Here. I survived. I have a story to tell you. Don’t forget me. And remember that I took time to write to you and to encourage you to never give up on your dreams. Never settle. Never say Never. Get out there and Live.
Live Live Live, Life is a banquet and more poor suckers are starving…
We are not meant to be alone. Believe me. It is true.
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