Thursday: Dueling Dragons …
It was a pleasantly BALMY day in Montreal today. This week, we saw temps that are darn right Springy … But we are warned that it won’t last, and that March is going to keep us in the cold for another month.
This week saw all kinds of change.
I live with competing dragons in my system. And either one can be in control, but not both at the same time. And one never knows who is in control until I drop labs. This round, my HIV is in good check but my Diabetes is all out of whack.
On Tuesday I went to clinic one for my lab drop session. Both brothers were in attendance, I got to kill two birds with one stone. The drawback is this, depending on who rules the roost, medication has to be adjusted, and you can’t adjust one side without adjusting the other accordingly.
Doctor Chris, over the years, has managed my medications very well. Because I’ve been testing drugs for him for many, many years. And if they work for me, (in our respective medical circle of drug testers), we are the main line to getting drugs approved in Canada on the whole. So what we do is very important for the community at large.
One by one, over the last five years, my twice a day drugs, have been dropped, opting for once a day dosing medication. But the Once a Day dosing takes time, because the new drugs in the pike were taking longer than usual to get to me, (read Us).
This week, new drugs came online finally. But, if you change one side of the equation, then you have to change the other in conjunction. HIV medications and Diabetes medications, don’t always work together. And I don’t know if one or the other is working well, without trial and error dosing.
If the trend drops either way, the HIV drugs come first.
If I don’t live, no other drug is going to make a difference. So Doctor Chris has to make sure that any new drug he gives me now, needs to plays nice with Diabetes drugs. This round, Diabetes lost.
A new Single dose HIV medication came online … EDURANT
Before I could take this pill, Doctor Chris had to make sure it would work with everything else I was taking already. It didn’t. Which meant my Diabetes drugs had to be tweaked.
Doctor George dropped my Janumet, because Metformin cancels out any good the Edurant will do. Which means I am down one Diabetes drug. And that was the end of that appointment.
Wednesday, I saw Doctor George at his clinic and along with his trial nurse, tried to figure out what they needed to do to make up the difference.
Three months ago, I went on Trulicity injections, once a week at a low dose. Now, it seems, that the low dose was not enough, because I am not managing well at all.
While they conferred together, I stepped on the scale and learned that I dropped ten pounds over the last six months. I knew something was up, when I put on a pair of hubby’s skinny jeans and they fit, WELL.
My Diabetes team upped my Trulicity to double the dose, weekly, along with Invokana, I have a bottle of Glyburide hanging in the wings if need be.
When I got home, I sat down with my nutritional map and planned another tweak to my diet, I am working to eliminate sugar intake at all levels. I put the new plan into action, and I have three months to see how all these changes work together.
If this series works, as it is hoped it will, I will manage both dragons better, and that is the plan. I can produce 1200 t-cells with my eyes closed. That is a given. I am over the ten year mark where my viral load is still undetectable.
Diabetes on the other hand is a capricious lady, who does not play well on the playground.
I have to test every other day to check my trends. I don’t have to prick myself every day any more. The Trulicity is a slow release, weekly dosage. Now that dosage is doubled, along with a moderated dietary plan, it should all work.
Now we dose for this observation period. And I hope to see further weight loss, and better numbers overall.
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Tonight’s take away … I would be ok, if everyone would just leave me alone.
How many of us got to this point before we stepped into the rooms.
Our speaker tonight got sober in December of 1994, the same year I got sober the first time, and I was reminded that had I stayed the first time, I would be 23 years sober now.
But that was not meant to be, and as he said to me, I had a hiccup.