On Being 40 …
The lights go down, the smoke machine is fired up and Seal is on the turntable. I stand in a large space, it is just me, the smoke and my music, as I ready for the nights events. This visual is very useful because it takes me back to the most important time in my young life as a gay man – and an HIV positive man.
I have spoken of this time and place at great length in the pages here on the blog. But I invoke it as I write because it taps that part of my brain where all those memories are stored.
This is supposed to be my “40th Birthday” retrospective. None of my friends have offered up any wisdom to turning 40, and several of my blog reads reached 40 before I did, and they seem to be well adjusted and the same men I knew before they turned 40.
I am not feeling any kind of depression or do I have any problem with my body image the only vain thing I do for me is cut and color my hair, to hide those ugly grays!! That reminds me I need to make an appointment for Tuesday!! It is Sunday Late night as I am writing this.
I was 26 when I was diagnosed in 1994. The doctors gave me 18 months to live. And here we are celebrating my 40th birthday. All the men I loved, liked, followed and idolized in my young gay life are dead, and I am still here …..
I have much to be grateful for. I have many men to thank for getting me here. The men who saved me from death at the Stud, the councilors who helped me cope and heal, the doctors who treated me, the men and women who “Loved” me into existence. Little did I know then, in 1994, that we would be here celebrating. I guess as a gay man with AIDS I see the world differently than most of you.
I am not consumed with the trappings of wealth. I am not a rich man nor a rich husband. We live on modest means and I work a modest job doing God’s work in my community. I don’t obsess over things that most gay men obsess over.
Image, money, wealth, sex, men, drugs and alcohol and going out to the bar to socialize. I guess I have mellowed with age. I have grown into the man I really want to be. And I can’t complain, because I have everything I need today. Being sober is another additive to this perception.
I get tired of reading whine after wine. Marriage has tempered me – life has taught me how to be married. That you find one to love – and that one loved you in return without question, argument or issue. Hell, I had no idea I would fall in love and get married when I was 26. I was concerned about getting through the day alive!
For many months after my diagnosis I kept a daily calendar, marking the 560 days until my death. My first sponsor kicked my ass several times over this. He was apt to tear the calendar off the frig and I would, as usual make another one. It was my way of coping then. When I reached that “Death Date” and I was still alive, it was only then that I started to work on a future.
I was sick an awful lot in the beginning. I was in the hospital all the time. I was sick as a dog for long periods of time. I haven’t had a major illness in many years. “knocks on wood!”
When I turned 30 that was in 1997. I had been sober three years, I was living in Miami, and going to the Coral room for meetings. I made it four years sober. The good thing about hindsight in sobriety is this: I can see what I DID and DIDN’T do right. From 1994 until my slip after four years of sobriety, I was just learning how to survive. Granted staying alive on the U.S. Medical system was a chore, let me tell you.
This is not racist but I was on social assistance and HRS assistance for a long time until I got on Medicaid. And I have to tell you that I had to go to places that “little white boys” did not go in the daytime! Let alone after dark. In order to get services I had to work the system before I either got denied, got sick or DIED! In the United States, Miami, in fact, until I found the loop it was kill or be killed. People were not going to help a little white boy with AIDS, that was clear. And the Government, sure as shit thought i was better off dead than to give me assistance. That is where I learned to be a “Cast Iron Cunt!!”
More than a few times I had to stop taking my pills and get deathly ill to get someone to help me. When I applied for disability I was so sick, I thought I was going to die. I stopped bathing, stopped taking my pills and walked into that government office that day, I was green. I coughed all over that poor women who signed off on my application and finally I made headway and I was able to get what I needed to live.
I became the Cast Iron Cunt from hell. Because I knew where all the contacts were. I had files at home, phone numbers and names of credible people I had amassed for myself. And more than once I was called to a hospital to help a friend who was set in chairs for 13 to 15 hours waiting for a bed, unpilled and unfed!! Those hospital administrators were truly afraid of me, because I was fucking kidding.
These people, my people would be helped or they could find other jobs. We got a lot of nurses and care workers fired over those years. There was no time to train you – your a health care worker, then do your fucking job asshole! Because we aren’t getting better with you worrying about getting AIDS from someone, unless you were fucking us or using our needles…
I was a Little Mean Asshole.
My parents did not help me. My parents traumatized me as an adult and that is their shit, not mine. I got them back years later. Never tell lies to your children because eventually they get washed out in the laundry.
So where are we 1997, I was 30. I was still alive. I set out on a number of really BAD decisions, a geographic that almost killed me a year later. That brings us to the year 2000.I was back in Miami in July of 2000. I stayed with friends after my relocation back after I was hospitalized with facial and bodily trauma.
I was agoraphobic I wasn’t eating and I had to reconnect to the system after being away from 18 months while I tripped to hell and back. I found a place to live, I had a job and my doctor took me back as a patient. That man saved my life. I tested every drug on the market from 1994 THROUGH today!! So Thank me….
I had to learn how to live again. I had to learn how to go outside. I had to take back my life. And Andrea, my therapist saved me once again. I was so god damned lucky you know that, I met some incredibly amazing people in my life, and they all played a part in getting me here. People who believed in me when I could not believe in myself. People who loved me until I could learn what it meant to Love Myself. That took YEARS !!!
And I was on the fast track plan, because people with AIDS were not living very long in Florida. Every time I saw the quilt, hundreds of more quilts were added yearly. This is the period that I learned that Dana Manchester had died. He was a drag queen artist that I knew when I first came out at the Parliament House when I was 21 – in Orlando. That’s where I came out!!! All good gay boys who live in Florida come out at the P-House!!!
God, Ive been though some serious shit in my life. AND I Lived to tell the tale! I am one lucky son of a bitch!! Someone up there likes me. I guess in a way, loosing the people I loved early in my life “family wise” steeled me to either live or die. My grandmothers deaths affected me in ways that nobody knows, not even my family.
And I don’t have any family to speak of left in my life today, and I haven’t had any family in my life since well before I left the states. My parents condemned me as an abomination. Funny that I went on and got a Degree in Religion from Concordia University in Montreal and I did it all before my 40th Birthday…
I showed you, you Fuckers !!!
I’m sorry, but Itty Bitty Bad Ass creeps up on me at times, when I reflect….
I have ever right to be angry … Their loss. My Loss. Nobody won that fight…
I miss my Master.
I miss my friends.
I miss the past – the laughing – the fun – the Joy of drag shows and of being young again.
My mother told a strategic lie to her children. And in 2001 I capitalized on that lie. My mother had retained her Canadian Citizenship until AFTER my brother was born in 1970. She was naturalized in 1974. I had an out – and I took it. They fucked me over and so the last fuck was mine and it was going to be a good, wet and dirty one…
I was 34 years old when I left the United States. I packed everything I owned and I set off for the new world. Hell, I was still alive!! And I had not even started living yet. I was just merely surviving. But I was SOBER when I pulled that next geographic and I STAYED sober during the move.
I came for Easter 2002 to Montreal. I stayed two weeks, I just LOVED this city. And I still do. It is not Miami… that’s when I returned home packed and I left. My parent’s were horrified and insulted that I would gain Canadian Citizenship because of my mother’s well told lie… She almost got deported over my application. She was so angry at me she was spitting!! It was great! Payback is a bitch!!
Itty Bitty Bad Ass…
The last conversation I had with my mother was in 2003. She said to me and I quote:
“If we get sick and one of us or both of us die, we will not call you nor notify you of any funeral or tell you where we are buried!!”
How do you like that line? I had to cope with this news the best way I could. So I had to bury them in my heart forever. We had hurt each other to the point of severance. I was going to have the last laugh. But my mother cut me to the bone. I have seen her twice here in my apartment. She came on my 1st and 2nd wedding anniversary. I saw her here and I spoke to her.
I have always said that the one thing that would send me over the edge and I would drink over is the thought that she is dead, and nobody called to tell me. I’ve often fantasized about getting on a plane and taking revenge on the one who kept the secret. That is really the only evil thought that flits through my brain on occasion. I am sober and I want to keep it that way. But I tell you, if this secret ever becomes reality, I will surely go insane!!
to you all hearts are open,
all desires known,
and from you no secrets are hidden.
Cleanse the thoughts of our hearts
by the inspiration of your Holy Spirit,
that we may perfectly love you,
and worthily magnify your holy name;
Through Christ our Lord. Amen.
So you know the rest of the story if you’ve been reading this blog. All the stories and achievements are there to read about, including the history of Jeremy. I came to Canada to conquer death. I did that. This will be my 40th birthday, and I am still alive. There surely is a God. I know his voice and I’ve seen his face. I am loved.
- I came to Conquer Death
- I met a man in sobriety
- I married that man in 2004
- I went back to school at age 35
- And I graduated in June of 2007 with a Degree in Religion
- I am still sober – by the Grace of God
- I am still alive – by the Grace of God
I don’t worry about dying any more. I don’t worry about the past any more. Save one truth of secrets would probably kill me, so we don’t talk about it ever. I trust my gut to know what God is telling me. My psychic abilities are strong enough to know the truth about death. And I know for myself today. And I have accepted the truth in my heart and I am the man I wanted to become and am still becoming. So join us at Tuesday Beginners tonight and let’s celebrate my birthday Big Brassy and GAY!!!
When I had my near death experience in 1997, I went across and was seated in a garden of the most beautiful flowers. They sent me back without any answers that I had questions about. I met a wise man one night who said to me, “Why wait till you’re dead to ask your questions, ASK them NOW! So I did that…
I’ve never told anyone what I am about to share with you…
In 2001 – I had two “visitations” in my South Beach apartment. One by the Lady in White. She came to bless me. She brought the scent of roses, that I could never find the origin of and never did. I never smelled those roses ever again after that …
The second was the “taking” where I was lain on a table, in a room where beings were present. They pricked my arms and told me that I would be healed and that I would live, that all would be well. Somewhere inside I knew it and I felt it, that was the first time my t-cells ever hit 1000 – in my labs in the Spring of (2001), on the last round in July my T-cells were 1186!! My T- cells have been hovering at 1000 since 2001. They had never gotten that high before ever before…
Someone is protecting me … My faith has saved me, and Christ has redeemed me, and God continually blesses my life. Thank God for all of you.
Thank you to all my readers and friends and fellows. And as always, if you like what you read, please, by all means let us know. It is always nice to hear from my readers. I am not your “run of the mill” Christian, but quite the opposite.
I just do what I am called to do
I help where I am directed to
and I love because I am commanded to
And from the Old Testament I remind of these most important words:
“The most vital commandment in the Old Testament is to love the Lord your God with all your heart, with all your soul, and with all your strength.” Deut. 6:5…
Bye for now…