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The Diagnosis of AIDS

Here is the story of that week from my journal. If we are to start anywhere, here is the best place.

July 4th 1994

it was a nice day. Josh and I prepared the house for company; we were hosting a “friendly” BBQ in Ft. Lauderdale. Alan and his hubby and other friends from the complex were coming, a veritable who’s who of my social circle back then. It was a great day. We cooked and ate at the picnic table out back – the drag queens in the adjacent area were entertaining, and the conversation was light and campy. The day wore on into night, and fireworks were going to be shot off over Ft. Lauderdale beach. So we piled into the convertible and headed out for the five-minute drive across the bridge to the beach. Parking was a nightmare, but eventually we found a spot to sit in. I remember that things were happy and there were no worries; we were out celebrating the holiday. After the fireworks we came home and imbibed a great deal, and sat down to watch the new film out on video, “Philadelphia” with Tom Hanks. Little did I know how much life would…?

Imitate art that week?

I watched with a certain attention, as if saying to God, “I know what’s coming so please be gentle with me, because I am not sure I am ready to do this or die.” It had been a year since the first time I was tested at “Planned Parenthood” and that test came back negative.

The second test was done in a city hospital lab, and those results came back negative as well, but six months later we found out on the news that the lab had switched our (100 gay men’s) HIV tests with a retirement home lab list. It was freaky when 100 elderly folk got positive HIV tests back from the lab, OOOPS – someone made a HUGE mistake.

Anyway, that was that.

Around 8 o’clock I called my parents to wish them a Happy July 4th; there was another piece of information I needed to get across to them, and this was not going to be very easy, I had been feeling pretty sick since January, and checked 7 of the 9 symptoms off the list from “If these things are happening to you — you might have HIV” wallet card.

The conversation started light and airy, then all the air left my lungs and I could not breathe. And this is how it went

Hello…

Hello…

Pleasant conversation, then I dropped the bomb!

I have some news for you.

Yes, what would that be?

I’ve been feeling a lot sick lately and tomorrow I am going to see a doctor…

Silence.

I could hear the wheels spinning in their heads. My mother had been working in Home Health Care for a number of years and she had seen what AIDS can do to a human being; couple that with what they were watching on TV and she was having worse case scenario visions in her head!!

They were watching “Philadelphia” at their house at the very moment I called. Suddenly my mother must have looked at the TV and she screamed. Yes, that’s right, I am sick, and I need to go get tested tomorrow, it’s time. My father was listening in on the extension, and I am sure he was beside himself; his fag son was sick and putting two and two together led to only one conclusion.

Josh was sitting in the living room while I had this conversation, he didn’t say a word. I had to prepare him for what was coming; Josh and I would never see the end of the week together. In the end, I would never see Josh again.

After a bout of hysterics, I told them that everything would be all right and I ended the phone call. That night I did not sleep at all, and Josh was all over the place. He was such a quiet and calm young man; we were both young then. We had only been dating for a couple of months by that point. Tomorrow’s test was just a formality; I knew already the answer I would get confirmed in a few days’ time. I did not tell any of my friends that night. Todd and Roy were in Provincetown on holiday. But I would eventually call Todd.

Tuesday July 5th, 1994

I got up this morning, with one item on my list of things to do today, and Josh did not sleep all night and was restless and upset. I got him up and ready for work and I drove him to work, and then proceeded to the clinic where my friend Ken was working.
It was in a little “medical mall” type building. The offices were on the second floor of the suites. I parked the car, put up the top and sat in silence and I prayed. “If there is a God up there, please, whatever happens, I am not ready to die.”

I find it peculiar that certain prayers at certain times remain locked in my memory on certain days of my life. I locked the car and walked the fifty feet across the parking lot and went into the office, where I was asked to take a seat and wait. Do you know what it feels like to be told “hurry up and wait?” I just wanted to get this show on the road.

You see, where I worked, at the nightclub, Ken, my friend, was the nurse for the masses. He worked off hours at the free clinic, he donated time to events, and he did home visits and took care of all of our friends who are now dead, at that time, so he had seen a lot of friends die in the five years we lived in Ft. Lauderdale. He was a very emotional man, who wore his heart on his sleeve and I knew that.

This was a hard week for him; any new diagnosis is hard when you are such close friends and part of a dynamic community where everyone knows each other intimately. We had seen each other over the weekend at the bar; I worked all weekend long. He knew that I was sick; because he was the one I went to when things got dicey. I think he knew as I did, but I think we both wanted things to be different. Alas, they weren’t.

Ken was preparing himself to do what he had to do and keep a straight face and be strong in front of me, you know, be positive about things, and keep up appearances so that I would not crack under the pressure.

It was time. Ken came and got me and escorted me to the lab, and he did not look me in the eye the entire time I sat there, tears falling from his face. It was quick, and painless. Afterwards he sent me off into my day. I signed the papers and went for the door; Ken was right behind me. He walked me to my car, and stopped and he sobbed in my arms. I was relatively calm. You see I was only 26 years old, and many of our friends had been gruesomely sick and died long drawn-out deaths. It was NOT pretty; many of my friends had KS, and cancer and some of my friends lost their minds and many of them died alone, because friends, lovers and family had thrown them out on the streets to die. Ken and I were people who cared for these people from the day they were diagnosed until the day they died. It was sad.

He said that he would call me in a few days and let me know when the tests come back…

And he tried to leave it at that.

I grabbed him and looked into his eyes and I told him,

“I know, and when you call I will know, just by the tone of your voice!”

He kissed me goodbye and I went on with my day.

I don’t remember what I did to pass the time until Josh got off work, but we tried to live normally and not get too upset over things. All I remember is that once the word went around that I had gone for the test, my friends started pulling away. It was the longest week of my life.

Friday July 8th 1994

the week passed by without incident. Thursday I waited impatiently for the phone to ring, and every time it did, I would jump through the roof. Alas, Thursday night I went to bed, knowing that tomorrow it would come.

I got up in the morning and drove Josh to work and returned to the house. It was around 11 am that the phone finally did ring. It was Ken. His voice was shaky on the phone, and all he said was “Jeremy, you need to come to the office, and you need to come now!” Then the line went dead. I got dressed and headed over to the clinic. I already knew the answer, but you never know, right? I parked the car, and said my prayers, and I rested for a moment.

I went up stairs and logged in at the reception desk. Ken was nowhere to be found. After a little while they escorted me into an examination room; it was blue in color, very sterile and cold. I sat down on the table and I waited. A few minutes later the doctor came in, file in hand. I guess he wanted to make sure I was prepared for this.

“Well, no better time than the present,” he said.

Let’s get this over with. “Jeremy, you have AIDS and that’s the bottom line. ”

“You are going to die.”

The words rolled off his tongue with the flair and style of a practiced doctor. He sat with me for a few moments while I considered my fate. I think he was hoping that I would say something.

“Thank you for that information,” I replied.

He said that we would need to do a few tests to get started; those labs would show just how compromised my immune system was, and what the next course of action would be.

I did not know how bad things were, but I would soon find out. Back then, who knew from death or life? Drugs were hard to come by, and there surely was no system of treatment in place for me to go to.

He dismissed himself and said that when I was ready, I could leave.

So I gave him a five-minute lead on me, then I gathered up my soul and I walked out the exam room door and out to the car. I looked down from the second floor and Ken was sitting on the hood of my car, waiting for me. When I got down to my car, Ken stood up opened his arms and embraced me; he was sobbing. I stood there; I guess I was in shock. I stood there and held him, while the wave ran over both of us.

I guess I was not prepared to show my cards just yet. We talked for a little while and we set out a plan of action for the next week. I would return to this lab and get some baseline labs drawn to get a more total picture of my immune system and figure out how I was going to proceed. (That’s what eventually happened in the coming days.)

I drove home. I was relatively calm. It’s funny that I was totally prepared to stand up straight and tall and accept my fate, but watching my friends and coworkers and family crack up was very disturbing. People with AIDS were pariahs! You did not touch them, you did not hug them, and you surely did not want your neighbours or family members to know that you socialized with or employed someone who had AIDS, God forbid we infected someone you knew or even transmitted our disease to you by touch or breathing in the same space!

I got home, and I sat in my space and I tried to make some decisions. Who do I tell and when? I don’t remember what I did that day, but I kept myself busy. I called Todd and Roy, and they were on vacation. When Todd got the news, he was sad, and immediately he stepped up to the plate and became the man who would save my life.

That evening, Friday, I went to pick Josh up at work; I forgot to clear the tape deck in the car. The soundtrack to “Philadelphia” was still in there. It was around 5 o’clock when I picked him up; the sun was setting in front of us as we drove east towards the house. I tapped the tape into the deck, and it started to play…

I watched Josh convulse in the front seat, and throw up out the car door. He was hysterical. I did not have to say a word to him, but he knew. When we got home, he went into the bedroom, he packed his duffle bag, without a word, he looked at me, said goodbye, and walked out the door, got into his car, and drove away. That was the last time I saw him.

Whoa, OK, one down … two more to go.

I had some dinner and proceeded to call my parents. You would have thought that an atomic bomb had been dropped on my parents’ house. My mother, having worked in the health field, said to me that I had gotten what I deserved. She and my father had had a week to consider this topic. We discussed my plan of action, and I called a family meeting that would take place in a week’s time. I wanted everyone to be informed and I wanted to know that I was not alone.

That visit did take place. And it did no good to ensure anything but the disdain and ignorance by my family to step up and get involved in taking care of the future. I had made my choice, by doing what I had done, and I got what was coming to me. My father had made that perfectly clear.

I still do not know, to this day, if James was the contact point of HIV. All I do know is that James was a diabetic and was suicidal. That he was sick those last few months that we were together, and I did his blood tests with his pen. I handled the strips several times a day. And that they tell me was the transmission point. I did not know he had AIDS until well after his death, when a friend of mine called me at work one day back in ’93 to tell me he was sick and had AIDS. I guess it took me a few months to “seroconvert.” This is the process the body goes through when it’s finally hit with viral replication and inception of a virus that the immune system cannot fight alone.

Over the next week, I chose my battles wisely, I told my inner circle of friends. The ones on the inside of the AIDS circle (that I was part of at work.) On the other hand there was the other circle of my “social friends” that had partied with us just a few days earlier. They would never set foot in my house ever again, in fact, and it was as if I had walked off the face of the earth, because I never heard from many of them ever again. The stigma of AIDS back then was deadlier then the virus itself.

Todd eventually returned to Ft. Lauderdale. My landlord and his lover were notified.

Interesting that many years later, I was at a Pride Celebration in Ft. Lauderdale, and my landlord’s partner was in a wheelchair and sick with AIDS. When we were friends at the time of my diagnosis, they were a happy couple, with all the promise in the world. I had no idea. I did not lose my apartment, my rent was frozen where it was, and they helped me pay bills and buy food. Within days Todd had returned and he came over and we talked. (God, we spent a lot of time talking!)

I was in self-destruct mode. And the stress of being sick with AIDS took its toll. I drank around the clock, I drank at work, I drank after work, and all I wanted to do was die. Todd did what he could at the beginning to keep me on the straight and narrow. He outlawed drinking while on shift, (I was working in a nightclub then) so that kept me sober while I worked.

I would then head out after we closed to the “after hours” club called the “Copa.” It was down the street from where our club was, and they served alcohol till 6am. So I had at least two to three hours to get inebriated nightly. That lasted until the end of August.

One night, I decided that the pain was too intense that dying was a viable option, seeing that I knew what all of the men I knew went through. I was at the Copa one night, and it was hot and I had drunk myself into a very nice BUZZ. The problem here was, I wanted more, and I got more. That night, I collapsed on the dance floor in an alcoholic overdose of gargantuan proportions.

I woke up in my friend Danny’s arms. The ambulance was there and oxygen was administered. I was still alive. That was the last night I drank. That morning, Danny brought me home and he stayed in my house for a week. I could not go anywhere except work. Todd was worried that I was going to try and kill myself again. So I had babysitters when I was not at work. I hit my first meeting on August the 23rd, 1994. By that time, most of the bar staff was all sober, and three-quarters of us were sick with AIDS.

Todd had a safe rule in effect. We had jobs, and we got paid. If we got sick, and could not come to work, our shifts were covered by someone on staff. We did not get fired for being sick. The bar secured for us medical treatment through the local clinic, where one of our friends named Marie ran a community clinic/drug farm.

Ken came to my house weekly to check on me. My world got A LOT smaller.

Everyone outside my work circle walked away. It took me a long time to get over that. They were punishing me for getting sick. Like I needed any more punishment!

The religious fundamentals were making their cases for eternal damnation for gays and people with AIDS, and speaking out whenever we went in public. Funeral homes stopped giving services to people with AIDS and their families because of religious and social pressure.

Life was difficult, But, I survived, because of the community I lived in and the grace of Almighty God.

In retrospect, “it was the best of times, and it was the worst of times.” and if God gave me a choice to go back and repeat any area of my life over again, it would be that exact period of time, and I would not change one single thing.

For years after my diagnosis, my friends died left and right, 162 people. The Names Project Quilt is a reminder of all the lives I touched and was a part of, and all the men whom I knew and loved.

All the men who were CRUCIAL to my survival (our survival) all the gay men who collected money for People with Aids, the drag queens we loved and admired and partied with over the year, the diehard supporters, are all dead now.

So many boys, so many men, cut down in the prime of life. We were foolish then, and uneducated. It was only after the storm hit that the reality start to sink in. When our friends started dying and we realized that “something serious is going on” did the community got smart.

We built infrastructure. We created homes and safe spaces. We cared for those on the streets, we collected money and food. We cooked and fed people, we washed clothes and in some cases we even changed diapers.

A year later, in 1995, I moved back to Miami, after Todd and Roy moved out west to San Francisco. I did not go with them, I was too young, and I had been banking on the fact that my S.O.B father would die and I would take back my mother. Well, he is still alive, all these years later, and I did not get my mother back. Do I have regrets? Sometimes I do. I sometimes think, “what if?” but that’s all they are, thoughts. You know what they say about living in “what ifs right?” So I don’t think about what ifs anymore, just what will be.

From my diagnosis date through the first eight years of my life with HIV/AIDS, I lived in the United States, and I speak about navigating a U.S. program of medical, social and government system. I immigrated to Canada in April of 2002.

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Mourning, Death and Dying

One of the areas that set us apart from the healthy man or woman on the street is that when we are diagnosed, we are faced with the fact that this disease just might kill us, Which brings me to the following point, death and dying.

After I had been diagnosed in 1994, the doctors told me that I had 18 months, tops to live, so I better take care of what I needed to and enjoy the time I had left, then I was dismissed to do that. What did I know about death and dying? Not a thing.

I look back now and I can see why this point is so important to stress. When you are diagnosed with a terminal disease, well now, HIV and AIDS has moved from the position of a death sentence to a possible long term management project for living. That does not mean that this is any less important.

Death and dying is not dinner or coffee table discussion, until it directly affects someone or a family member by any degree of separation. I had an opportunity to study death and dying in a university class setting my first year at Concordia University, and my HIV was one of the topics raised in class because I was the token HIV positive student.

One thing that sets the normal human apart from those of us who have been diagnosed with a terminal disease is this, they do not have to think about their mortality until the end of their lives, we have to deal with it from the day we are diagnosed. Once the words are passed to you that you have HIV or AIDS, your life has just changed forever. Nothing will ever be the same. The mantle of responsibility for living has just been laid on your shoulders. Our normal notion of living a rich and full life has eternally changed. What you do with that knowledge is incredibly important.

When we experience a death in our family, or when friends pass on, we either stuff the experience or deny the feelings of grief, or we deal with grief in the ways that so many writers over time have talked about. Unlike the death of someone we know or love, mourning them is different than mourning your own life and death. This idea of the mourning process became important to me “after the fact” because I did not have this tool in the beginning. I could not articulate what I was going through, because I did not have proper education to do so.

Here is the idea, in order to process where you are going, you must first look at where you came from. Looking back at the path you are walking is important because it illustrates two very important ideas, one, that you have traveled so far already and that there are miles to go before you finish your journey. And you do know they say that “It is not about the destination that we should be concerned with, but it is ALL about the journey.”

Each stage of the “journey” is not something you rush through to complete in one weeks time, but I encourage you to give it some thought. Mourning ones own mortality is a totally different experience, as I said from mourning the loss of someone we knew or loved.

There are 5 stages in the grieving process, and they are:

  1. Anger
  2. Denial
  3. Bargaining
  4. Depression
  5. and Acceptance

We have this list of stages, but these emotions come in various different orders when one is faced with the words “you are going to die!” I know for myself that I did not get angry at first. It was more like utter fear. I froze for a long time, I had no idea how to feel or how to express it, and there were not many wise men or women to teach me about mourning, and so what did I do? I drank, and drank and drank so that there would not be any “feeling.” I was depressed for months in the beginning, then I got angry, and I stayed angry for a long time, but in hindsight that negative anger did me no good, until I learned how to take that anger and point it in a positive direction to help me deal with what I was facing.

Holding on to negative anger about ourselves or the past or where we are or other people is only destructive and serves no purpose but to bring us down and to make us miserable. This was an incredibly helpful tool which I use even to this day.

We all have issues to deal with in our lives, and right now I am concerned with giving you some necessary tools to help you cope with things from here on out. Had someone told me these things in the first few weeks after my diagnosis, I would not have wasted so much time spinning my wheels, “staying crazy in my head.” Into my head is not a place I like to visit very often and not alone or without a hardhat. The only thing negative anger did was to keep me focused in my head, and I could not see what was in front of me, I was blinded by my anger. And that anger directed negatively almost killed me.

There was no denying the very real fact that I was going to die. I had a daily reminder of that for months. I thought I had been prepared for this, I was wrong. The stampede of emotions came on so fast, all at once, that it seemed like a tidal wave hit my beach and I was floundering in water that was too deep for me to hold my head above the water.

I did not shed a single tear in the beginning, because as a young person in my family, we were taught that “feeling” was not something we did at all. Those emotions never leave us, eh? They follow us, through the rest of our lives. It is your job to learn how to manage them properly.

 

You see, all the issues that we had with self and family prior to our diagnosis are only magnified and the past will directly affect how we deal with our own personal and medical issues in the present and if you don’t get a handle on these truths now, they will affect how you deal with your medical diagnosis and life in the future.

Time is linear and everything that happened to us earlier on in our lives stays with us, no matter how hard we work to either stuff or forget those memories. I have learned in as many years that if you don’t deal with your baggage and if you let it pile up you will be sitting in a therapist’s office until you die.

That’s why it is important to learn that one should not create memories for yourself that you are going to spend the rest of your life trying to forget. Issues from childhood are a major theme in the writings of many people I know today. So let me say this to you, whatever choices your parents made when we were children, we NOT our choices, were they? Everyone has choices, so issues of the past will follow you forward, and if you had not dealt with them before, they will still exist after a diagnosis.

It took me years to figure this out and work on what needed to be worked through. Nobody escapes their childhood, or the sins our parents committed. I know very few adults in my life these days who did not escape having issues with their pasts. It is what you do with those memories and how you choose to let them affect your future that is the key to successful living.

I guess you could say that my addiction to drugs and alcohol was the first sign that I was and had been in denial for a long time, because there was not going to be anyone or anything that would stand in between me and my using. If there was something going on in my life, in order to deal with it, I had to drink and drug that was a very key problem from much earlier in my life.

For that first eighteen months of that portion of my life, I bargained with God to let me live, even though at the same time I was trying to kill myself with drugs and alcohol. I was walking a very fine line between life and the abyss. I didn’t want to die, I was still so young, and I had not even begun to live yet. For the last 5 years I had been on the razors edge. I got involved in relationships that ended terribly, I was broke, James was dead and I was trying to find myself. The one good point to remember here, I had a safe job, in a safe space, with all the safety I needed to help me live.

I was in self destruct mode in those days. A few of my friends had gotten clean and sober before I did in August of 1994. The dominoes were falling in a specific order, my boss had to step in and order me to help myself, and he forced me to deal with what I was going through after James’ death. Now a year later he knew that I was in trouble and he did not want me to die. I got help, I got sober and I started to climb uphill, and I must tell you that it was the most painful and in the same vein, the most wonderful period of my life.

If I could have one thing before I died, it would be a second run through this two year period of my life, not for the bad parts but to relive the good ones.

I have battled depression since well before I was diagnosed, and it is a manageable condition that is part of my daily life. There were times that I felt like I was drowning in misery and negative thought. I began to see a shrink just after my move back to Miami in 1995, and I have been on a few depression medical regimens. They ploughed me with all kinds of pills in those first few years, it was insane.

I had to come to a point that I wanted to deal with my personal issues and not just take a pill and “voila” those issues that were in the front of my brain would magically disappear! wrong!

There is not a pill or treatment on earth that will remove issues or memories from our hearts and minds. And I do not condone nor believe in electro shock therapy. For so many years all I did to escape the present and run from the past was to drink and drug. So long as I stayed in the fog, those issues would be masked and kept in the dark. But what I had to do was a three fold decision.

I had to decide that I wanted to live

  1. I had to stop using and drinking and
  2. I had to build up the courage to look at the past and deal with it

Those decisions did not come immediately and it took a long time to build up my self esteem and courage to look at what was bothering me in the present and what issues were dogging me from the past. I have to tell you that many of my problems in my life stemmed from the abuse that was heaped on me as a child and young adult. From the age of 26 through my present age of 38, I have worked on dealing with my past like an adult. And that is no small feat, growing up for me has been a trial and error journey of faith, prayer and hope.

Finally, we look at Acceptance. They say, in the program that “Acceptance is the key to all of my problems.” It has taken me a very long time to work on acceptance, because this key step has been a constant companion in my life. Accepting that I was going to die was an extremely bitter pill to swallow, seeing that I had no family to walk with me to the gates of hell. I mean, that’s where they would have walked me, not to heavens gates.

Getting sober in August of 1994 helped me greatly. The drawback of getting sober brought with it its own pressures. Have you ever tried to get sober in a “gay room” of alcoholics anonymous? Holy shit, queens are vicious when it comes to competition. I had to manage my sobriety, keep up a positive outlook on my life, I had to work to make a living and I had to deal with all the emotional issues that were looking me in the face, and I have to tell you that it was NOT easy by any stretch of the imagination.

My job was secure and my coworkers, my boss and his partner became the family I needed to help me begin to start rebuilding my life, because I had lost a lot in the preceding years physically and emotionally. We were all part of a very tight bar staff at a Levi Leather Bar called the Stud, in Ft. Lauderdale circa 1992-1995. It was the most awesome place to work, and I had the best time.

One day at a time, I walked, I reached the eighteen month mark and I was still breathing on the 560th day. Ok, I lived past my first “death date.” What the hell was I supposed to do now? I had no contingency plan set up in case I lived. I was totally prepared to die. I had accepted my fate and I was going to walk off the living plane with my head held high. From that day forward I have not looked back.

The happy bar existence was coming to a close as 1995, was passing us by, and by that summer it was apparent that things were not working out. The bar owner had, by then, lost his partner, many of our customers and patrons were dead, people and personalities were starting to clash. It had been decided by some that Todd and his partner were to be forced out of the bar, against all of our wishes and hopes. It was a very trying time for me, because if Todd and Roy had left, I was no longer safe and neither was my job. Alas, finally that day came, where Todd and Roy were forced out the door as I watched his friend Ray take control of the bar, and get rid of the one man who helped me and many other successfully fight this disease and live hopeful and prosperous lives.

Soon after Todd and Roy’s departure, we dismantled his house and they packed up the U Haul and left for the bright lights and big city of San Francisco, where they currently live. Many of the bar staff who worked at the stud made the westward journey. I was the one who stayed in the city. I was too young to make a leap that far away from the only place and life I had ever known. The other reason that I stayed in Florida was because I had hoped my father would drop dead sometime soon, I had spent many a night praying for him to drop dead, so that I could reclaim my mother and have her to myself for a few years before I died. I hated my father for many years, but like they say, “things change” and they did for me, I worked through that hatred, and now all I feel is indifference.

Here I had lost my mentor, father and guide. That broke my heart, and I became a holy terror at the bar, my anger knew no bounds, and I was out for total revenge and annihilation of the man who caused this rift in my life. This was a personal affront, and was going to stop at nothing to make him pay. I played the game for a few months, until I got a referral for a job in Miami come Labour Day 1995. I went down for a weekend to interview for a job at another bar, “playing lights.” By that time I was multitasking at the Stud. I was a really great light man. My knowledge of music from an earlier stage in my life helped me along in the profession that I had chosen for that period of my life.

Acceptance! I hated acceptance.

I had lost the stability and structure that I so badly needed during those first years. Now I was on my own. I had to make things work. I was literally “on my own.” I was sober now a little more than a year, I was moving to another city, I was starting a new job, and I had to find medical assistance to stay alive. Miami had begun to build infrastructure to help those who were sick with HIV and AIDS.

I made a few inquiries and visited the Mercy Hospital Immune Deficiency Assistance office. This interview was my saving grace. Every need that I had from that point on was taken care of through this office. I was forced to accept where I was in my life, and I had to make it work for me. I was forced to grow up again. Living with HIV is continual growth process. As you mature you learn and as you learn you evolve. Living with HIV / AIDS is not in any sense a “cake walk.”

It was not easy, but I had an excellent team of people and doctors who helped me along the way.

Acceptance is a daily practice. It comes over time and will make sense the more you work on it, choosing to live, is the first step in the art of acceptance.

2 responses

  1. That was one long read, but I am glad I finally got through with it. Interesting how I learn new things with every waking moment. I really appreciate the HIV/AIDS stages you have listed above. It’s like you are describing me, yet this was written way back. It was nice reading through, especially when you list anger as the first stage. Now I am not so confused. I had been very angry about myself, everything and everyone in the world, but I guess it’s a normal process then.

    July 5, 2007 at 2:24 am

  2. Michelle

    I Stumbled Across Your Page while looking information up & even though im not positive,Your Words Touched My Heart.i cant begin to understand what your dealing with or feeling but You Helped Me To Always Remember to Live Everyday To The Fullest
    I Hope That You Get Your Chance To Be With Your Mom.Im Sorry For The Trials In Your Family Dynamics..I Know All About That.
    Anyways Thankl You For Your Faith & Spirit!!
    Never Give Up & Never Forget

    March 1, 2012 at 1:04 pm

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